Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Directory

Kevin McQueen
Board Member | MBA
Father of Sean
Kevin is CEO at CapTech Ventures, an IT management consulting firm based in Virginia. His son, Sean, was diagnosed with FA in 2000 at one-year-old. He and his wife, Lorraine, fundraise tirelessly for FARF, holding several events each year. They have raised over $1 million for FA research and family support services. Kevin also serves on the board of directors for the Big Brothers, Big Sisters Foundation.
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News & Events


April 15, 1983 – December 27, 2017By Daisy & Marzban Ardeshir The story below was shared by Imroze’s parents, Daisy and Marzban Ardeshir, in remembrance of their daughter’s strength, grace, and enduring spirit. Our second child, Imroze, was diagnosed with...

We’re thrilled to share that Rena and Paul Rice, parents of two children with Fanconi anemia—Sydney (19) and Blake (25)—have made an extraordinary commitment to the FA community: a gift of $100,000 per year for the next three years to...