Advocacy efforts play an essential role in building stronger systems of care for rare diseases. By elevating the experiences of families and engaging policymakers, organizations such as the Ivan & Joan Foundation are helping move rare disease awareness and care forward in their communities.
Directory
Marie Sweeten
Family Services Director
A lifelong Oregonian, Marie loves exploring nature with either her running shoes or her camera. She has always been motivated to help others, which led her to pursue a degree in Human Development & Family Sciences from Oregon State University. With over 14 years of experience in social services, Marie brings resourcefulness and compassion to the team. At the Fund, she dedicates her time to helping FA families navigate the Fanconi anemia world in any way she can: “It’s a great feeling to be someone’s hero for a moment.” She strives to make a difference in people’s lives and also has a huge heart for animals. In her free time, she enjoys running, photography, going to the beach and spending time with friends, family, and her cat, Chloe.
What are you known for around the office?
Finding answers and resources. Also, finding the chocolate.
The Latest
News & Events
My name is Kambri, and I’m 17 years old. I was diagnosed with Fanconi anemia when I was five. Before my diagnosis, I just didn’t feel good for a while. I had frequent nosebleeds, bruised easily, and was tired a...
What I hope for most is a cure. And until then, I hope for Paige and others with FA to live lives as close to normal as possible, filled with opportunity, independence, and happiness.