When Ryan was diagnosed with Fanconi anemia (FA) at 18 months old, it was devastating. There were so many unknowns, and trying to gather information online was both frustrating and scary. When we found the Fanconi Cancer Foundation (FCF) and...
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Mark Quinlan
Outgoing Executive Director
Mark has served as Executive Director for the Fanconi Cancer Foundation since 2017. As Executive Director, Mark oversees all facets of operations, finances, and program development, while expanding the donor base, investigating new revenue sources, and elevating impact. He leads with empathy, inclusivity, and unwavering dedication to the cause. He has obtained a bachelor’s degree in Social and Behavior Science and a master’s in Public Administration, which have helped shape his leadership style. He strives to enact meaningful change and positive growth and feels most fulfilled when he is helping others.
“I love knowing that when I go to work each day I have the ability to affect the lives of others in a positive way.” Mark’s love of the outdoors brought him from his native Minnesota to the mountains of the west to pursue his career in nonprofit management while still nourishing his love of nature. He now lives in Coburg, Oregon, with his wife Cheryl. In addition to cycling and fly-fishing, Mark enjoys traveling and experiencing other cultures.
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For our family, living with FA means living with faith. We see Liam as a normal, healthy child who continues to grow and surprise us. At the same time, we know there are real challenges.
Advocacy efforts play an essential role in building stronger systems of care for rare diseases. By elevating the experiences of families and engaging policymakers, organizations such as the Ivan & Joan Foundation are helping move rare disease awareness and care forward in their communities.