It took me weeks to come to terms with the fact that there were no easy answers. I couldn't change the past or the diagnosis, so I focused on educating myself and becoming Tinslee's biggest advocate. We underwent all the necessary tests, scans, and procedures, and spent a year going in for lab work and check-ups.
Start From the Beginning
What is Fanconi Anemia?
Fanconi anemia (known as FA) is a complex disease that can affect every system of the body, and the severity of symptoms can differ widely from person to person. A diagnosis of FA has social, emotional, and financial impacts on the individual and family, as well. Being educated and supported throughout the process of diagnosis, and into treatment and management, is paramount to well-being and coping with a chronic disease.
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