​What is the FCF Virtual Tumor Board?

The Fanconi Cancer Foundation Virtual Tumor Board (VTB) is a panel of physicians experienced with treating patients with Fanconi anemia (FA) who volunteer their time to discuss difficult FA solid tumor cases and leukemia cases, to offer treatment guidance. The specialists on the panel have expertise in otolaryngology, hematology oncology, radiation oncology, and medical oncology.

The VTB was developed to provide support to individuals with FA and their treating physicians, who may have less experience with treating cancer in individuals with FA. Members of the VTB meet virtually with patients’ treating physician(s) to review cases and provide input for treatment, from an FA-centric viewpoint. This process allows continued learning on how to best treat cancers associated with FA, which in turn may help others with similar diagnoses.

For Patients with a Cancer Diagnosis

The FCF VTB program is most useful if you discuss the program with your treating physician immediately following a solid tumor or leukemia diagnosis. If you and your treating physician agree that soliciting advice from the VTB would be advantageous for developing a treatment plan, either you or your treating physician should contact FCF directly. We will then coordinate with your physician to set up a VTB meeting to review your case.

Your FCF contact for the VTB: communitysupport@fanconi.org or 541-687-4658.

The physicians on the VTB generously volunteer their time for this service, which FCF offers at no cost to you. The VTB may review US-based or international cases.

​For Physicians

If your FA patient has been diagnosed with a solid tumor and you’d like to review the case with the VTB members, please send a brief synopsis of the patient’s cancer-related medical history, along with the timeframe in which you would like the VTB to occur, to Andrea Ronan: andrea@fanconi.org or 541-687-4658 ext 302. We will provide you with more details on the process and coordinate the meeting with the VTB members.

Members on the Virtual Tumor Board

Julie Bauman, MD, MPH – Director, GW Cancer Center – The George Washington University

Barbara Burtness, MD – Professor of Medicine, Medical Oncology – Yale University School of Medicine

Jennifer Grandis, MD – American Cancer Society Professor, Otolaryngology – University of California, San Francisco

Joel Greenberger, MD – Professor, Radiation Oncology – University of Pittsburgh

Patrick Ha, MD – Chief, Head and Neck Oncologic Surgery – University of California, San Francisco

Kathryn Pennington, MD – Assistant Professor, Gynecologic oncology – University of Washington

Mark Robson, MD – Chief, Breast Medicine Service – Memorial Sloan Kettering

Vinita Takiar, MD, PhD – Associate Professor of Clinical and Vice Chair of Research, Radiation Oncology – University of Cincinnati

Sarah Temkin, MD – Associate Director for Clinical Research, NIH Office of Research on Women’s Health – National Institutes of Health

John Wagner, MD – Professor, Department of Pediatrics, Division of Blood and Marrow Transplant & Cellular Therapy – University of Minnesota

Sue Yom, MD, PhD – Professor, Radiation Oncology – University of California, San Francisco