“Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.”
Click here to read the full article about Amy Winn in Runners World magazine, out 6/12/2017.
Join the 20th annual Coley's Cause Golf Tournament as we honor the memory of Coley, who bravely battled FA. This event supports life-saving research and support for those affected by FA. Gather your friends and colleagues for a day of...
Join FA families from the Richmond, Virginia area for a fun day out on the course! Tee off with purpose as we drive towards a world where FA and related cancers are no longer a threat. Your participation not only...
We are delighted to invite you to the upcoming FA Family Retreat, taking place at The Painted Turtle from August 1-5, 2024. The Family Retreat offers a unique opportunity for families registered with us to participate in presentations by leading researchers...