When Ryan was diagnosed with Fanconi anemia (FA) at 18 months old, it was devastating. There were so many unknowns, and trying to gather information online was both frustrating and scary. When we found the Fanconi Cancer Foundation (FCF) and...
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Suzanne Planck
Family Services Coordinator
Suzanne is a native Californian who moved to Oregon in search of a greener, more peaceful place to raise her family. She earned her Bachelor of Science in Nursing and a Bachelor’s in Nutrition, then worked a nurse and homemaker before she joined the nonprofit world. “I believe in working to improve the lives of others and to make a true difference. I’m inspired by true, active compassion; this compassion asks us to get uncomfortable and inconvenienced. I admire those that are willing to put the needs of others before their own desires and comforts.”
Suzanne is driven by this compassion, working with the Family Services Director to support FAmilies by fostering connections, providing educational materials, finding resources, and planning meaningful meetings. A self-professed coffee addict, Suzanne loves spending time with her family and friends, serving the community, and being outdoors. Her perfect Sunday involves taking a nap after a big brunch at church and anticipating her kids coming home for dinner.
What are you known for around the office?
Baking goodies! Feeding people—it’s one way I show love.
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For our family, living with FA means living with faith. We see Liam as a normal, healthy child who continues to grow and surprise us. At the same time, we know there are real challenges.
Advocacy efforts play an essential role in building stronger systems of care for rare diseases. By elevating the experiences of families and engaging policymakers, organizations such as the Ivan & Joan Foundation are helping move rare disease awareness and care forward in their communities.