The children and adults with FA are why we’re all here. They are the reason for the countless hours spent in the lab, the energy poured into fundraisers, the conversations we have with anyone willing to listen, and the reason...
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Richard Gelinas
Senior Research Scientist | PhD | Seattle, WA
Dr. Gelinas has worked on problems of gene structure and function for his entire career. At ISB he uses advanced RNA and protein profiling methods to identify biomarkers for diseases of the brain, heart, and lung. He also contributes to studies of the genetic basis of mental disorders such as Alzheimer’s Disease and bipolar disorder and bone marrow disorders such as Fanconi Anemia.
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When Ryan was diagnosed with Fanconi anemia (FA) at 18 months old, it was devastating. There were so many unknowns, and trying to gather information online was both frustrating and scary. When we found the Fanconi Cancer Foundation (FCF) and...
For our family, living with FA means living with faith. We see Liam as a normal, healthy child who continues to grow and surprise us. At the same time, we know there are real challenges.