My name is Kambri, and I’m 17 years old. I was diagnosed with Fanconi anemia when I was five. Before my diagnosis, I just didn’t feel good for a while. I had frequent nosebleeds, bruised easily, and was tired a...
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Richard Gelinas
Senior Research Scientist | PhD | Seattle, WA
Dr. Gelinas has worked on problems of gene structure and function for his entire career. At ISB he uses advanced RNA and protein profiling methods to identify biomarkers for diseases of the brain, heart, and lung. He also contributes to studies of the genetic basis of mental disorders such as Alzheimer’s Disease and bipolar disorder and bone marrow disorders such as Fanconi Anemia.
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What I hope for most is a cure. And until then, I hope for Paige and others with FA to live lives as close to normal as possible, filled with opportunity, independence, and happiness.
Fear and sadness are embedded with Fanconi anemia (FA), yet I have always tried to have a hopeful tone to my essays thinking of the effect on the families who read it. This one is no different. I lost my gutsy 24-year-old daughter Tara in September. She was created by God for purpose. I always told her she brought out the best in people.