Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Mark Quinlan
Outgoing Executive Director
Mark has served as Executive Director for the Fanconi Cancer Foundation since 2017. As Executive Director, Mark oversees all facets of operations, finances, and program development, while expanding the donor base, investigating new revenue sources, and elevating impact. He leads with empathy, inclusivity, and unwavering dedication to the cause. He has obtained a bachelor’s degree in Social and Behavior Science and a master’s in Public Administration, which have helped shape his leadership style. He strives to enact meaningful change and positive growth and feels most fulfilled when he is helping others.
“I love knowing that when I go to work each day I have the ability to affect the lives of others in a positive way.” Mark’s love of the outdoors brought him from his native Minnesota to the mountains of the west to pursue his career in nonprofit management while still nourishing his love of nature. He now lives in Coburg, Oregon, with his wife Cheryl. In addition to cycling and fly-fishing, Mark enjoys traveling and experiencing other cultures.
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April 15, 1983 – December 27, 2017By Daisy & Marzban Ardeshir The story below was shared by Imroze’s parents, Daisy and Marzban Ardeshir, in remembrance of their daughter’s strength, grace, and enduring spirit. Our second child, Imroze, was diagnosed with...

We’re thrilled to share that Rena and Paul Rice, parents of two children with Fanconi anemia—Sydney (19) and Blake (25)—have made an extraordinary commitment to the FA community: a gift of $100,000 per year for the next three years to...