Jasmine Bennetsen

Board Member

Jasmine is 31-years-old and currently lives in California. Jasmine was diagnosed with FA as a teenager and received a bone marrow transplant in August 2019. She has been a leader in the FA adult community and formerly served as co-chair of the FAdult Council, an advisory council formed in 2019 to advocate for and represent the growing adult FA population. A professional photographer, Jasmine put her skills to use working for Apple as a camera engineer in California.

She has traveled around the country to speak at FCF events and has inspired many with her enthusiasm and authenticity. In her own words, “I am most excited to have the opportunity to impact the patient and family community for the better. I look forward to bringing the patient perspective to the board, and to being someone my fellow adult community can speak through.”