The Family Retreat offers families a break from appointments, treatment decisions and everyday responsibilities. Children can try new activities and grow in confidence while caregivers learn, share practical support and connect with one another. The relationships formed at camp often continue long after everyone goes home.
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Jakub Tolar
Dept. of Pediatric Hematology-Oncology | MD, PhD | Minneapolis, MN
Dr. Tolar’s research focuses on finding new ways of treating children with lethal diseases – cancer, inborn errors of metabolism, and devastating genetic disorders – using stem cell transplantation. He is also looking for safer and more effective methods of repairing and using a patient’s own cells in diseases such as epidermolysis bullosa, mucopolysaccharidosis type I (Hurler syndrome), Fanconi anemia, and dyskeratosis congenita.
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By Cecilia Córdoba, mother of Agustina Milagros Kaucic When my daughter Agustina was 2 and a half years old, our lives changed forever. It was very difficult to reach a diagnosis. And when we finally received it, it was devastating....
The children and adults with FA are why we’re all here. They are the reason for the countless hours spent in the lab, the energy poured into fundraisers, the conversations we have with anyone willing to listen, and the reason...