By Kelly McKenna My name is Kelly McKenna, and I’m a single mom to two amazing kids. One of them is an eight-year-old boy who has Fanconi anemia (FA). Logan’s medical journey started during my pregnancy at the 20-week anatomy...
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Jack Timperley
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Jack is 20 and lives in Park Ridge, Illinois, where he is a student of philosophy and business administration at Northeastern Illinois University. Jack has also spoken at several fundraisers all over the country, telling his story and expressing to supporters just how crucial their role is to advancing research. In 2019, he received the Amy Winn and Christopher T. Byrd Award for Adults with FA, for his work as an advocate, speaker, and student determined to make a difference. After he graduates, Jack hopes to pursue a PhD in a philosophy-related discipline and eventually start his own research and technology company.
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By Sarah Borden Our lives changed forever the day we learned our son Eli was diagnosed with Fanconi anemia. Just days earlier, we had celebrated his fourth birthday with family and friends, blissfully unaware of the journey ahead. When faced...
“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...