Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Directory

Alexander LaVake
Research Program Manager | MPH
Alexander was drawn to the public health field as a way to promote health and wellbeing within a framework of equity and social justice. He earned his Bachelor’s degree in Communications from Temple University and his Master’s in Public Health from Portland State University. He most recently implemented grant-funded food access and health education programs for at-risk and homeless youth. In his role as Research Program Manager, he works to advance FARF’s research priorities, including managing the grant award process and assisting with scientific initiatives. Alexander is thrilled to join the passionate FARF team and bring to this new role his drive to advance the organization’s mission.
Last year he relocated to peaceful Eugene after a decade in Portland. Alexander is an enthusiastic photographer. He also enjoys reading, travel, and cooking. He spends his free time loving on Oregon’s abundance of farms, forests, and food.
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By Kelly McKenna My name is Kelly McKenna, and I’m a single mom to two amazing kids. One of them is an eight-year-old boy who has Fanconi anemia (FA). Logan’s medical journey started during my pregnancy at the 20-week anatomy...

By Sarah Borden Our lives changed forever the day we learned our son Eli was diagnosed with Fanconi anemia. Just days earlier, we had celebrated his fourth birthday with family and friends, blissfully unaware of the journey ahead. When faced...