It took me weeks to come to terms with the fact that there were no easy answers. I couldn't change the past or the diagnosis, so I focused on educating myself and becoming Tinslee's biggest advocate. We underwent all the necessary tests, scans, and procedures, and spent a year going in for lab work and check-ups.
Events
FA Connect | Breaking Down Myths and Stigmas of Grief
Come meet Lori Krause, FCF Bereavement Group facilitator, certified life coach focusing on grief and loss, and end-of-life doula with experience facilitating groups in the rare disease space. In this virtual session, she will discuss some of the most common myths about grief and share tips on how to navigate the healing journey with compassion and self-care.
Event: Meetings
FA Connect | Breaking Down Myths and Stigmas of Grief
The Latest
News & Events
The Fanconi Cancer Foundation (FCF) is excited to announce that Dr. Isis Sroka has been named CEO effective August 1, 2024. She succeeds Mark Quinlan who served as Executive Director since 2017 and recently announced his departure. Quinlan will continue in an advisory role with FCF through a transition period.
On May 24th, 2024, the FA Europe Network hosted its inaugural pan-European scientific meeting at the historic Saint-Louis Hospital in Paris, marking a significant milestone in international collaboration for Fanconi anemia (FA).