Institution: Laboratorio de Citogenetica, Instituto Nacional de Pediatría, Mexico City, México Area of expertise: Medical genetics, dysmorphology. My work: I am a medical geneticist from Mexico City, introduced to the field of Fanconi anemia (FA) by my mentor, Dr. Sara Frias, whom...
Events
FA Connect | Breaking Down Myths and Stigmas of Grief
Come meet Lori Krause, FCF Bereavement Group facilitator, certified life coach focusing on grief and loss, and end-of-life doula with experience facilitating groups in the rare disease space. In this virtual session, she will discuss some of the most common myths about grief and share tips on how to navigate the healing journey with compassion and self-care.
Event: Meetings
FA Connect | Breaking Down Myths and Stigmas of Grief
The Latest
News & Events
At the Fanconi Cancer Foundation (FCF), we understand the critical importance of addressing mental health alongside physical health for individuals with Fanconi anemia (FA) and their family caregivers. Recent research on the mental health challenges faced by adults with FA...
The 36th Annual Fanconi Anemia (FA) Scientific Symposium and Adult Retreat took place in Charlotte, North Carolina in September 2024, and brought together researchers, clinicians, advocates, individuals with FA and community members from across the globe. This year’s theme, “It Takes...