Brazilian FA families
FA families in Brazil, led by a father to a teen with FA, and an adult with FA, will use their grant in two ways: holding a family meeting in Brazil in 2024, and establishing a Brazilian FA Support Group. Because Brazil is such a big and populous country with FA patients from all socioeconomic levels, organizers know that bringing FA families together in person is a very effective way to bring FA experts to the people who need them most. The larger goal of the project is to develop a dedicated Brazilian FA patient and family association, aimed at disseminating information, building a patient registry, conducting fundraising campaigns, and fostering international collaborations. This association will not only enhance local support but also contribute to global FA awareness and knowledge-sharing efforts.