Pioneering Research
for a Brighter Tomorrow.

A Beacon of Support

Fanconi Cancer Foundation

Our mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community.

Founded in 1989 by parents Lynn and David Frohnmayer, FCF’s contributions have been instrumental in understanding the disease and improving treatments, with more than $33 million funded for 260+ research projects worldwide. Life expectancy has more than doubled as treatments have drastically improved. We must now take on the most significant and currently unsolved problem facing the FA community today: cancer.

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The World Leader in FA Research

Igniting Solutions

Empowering Lives through Research

Cancer may be the most difficult issue that people with FA face in their lifetimes. As the leading foundation dedicated to supporting research on this disease, we must intensify our focus on this urgent and currently unsolved problem to discover solutions.

That’s why our research activities are focused on cancer prevention, detection, treatment and awareness. Because all facets of this disease are interconnected, we also fund research into gene editing and gene therapy, preclinical models, clinical trials, improving quality of life, and understanding the disease.


Donors Invested


In Research


Families Registered


Genes Identified

Unleashing Progress

Lifelong Impact

Our efforts extend beyond research, encompassing advocacy, community support, educational resources, and clinical programs like the Virtual Tumor Board and the FA Patient Registry.

We envision a future in which we can prevent and/or eliminate the primary causes of death and disability in people with FA, enabling them to live full lives. We've come a long way, but we know there is still a lot of work to be done.

You’re Among An Amazing
Community Of People


Donors Invested




Funded Researchers



Transparency & Accountability

Our Financials

With your help, we are improving the quality of life for people with FA around the world by funding exceptional research. FCF believes in and practices transparency, accountability, and efficiency. We are always striving to become more efficient and to ensure your generous donations are put to best use by directing as much funding as possible to grants and to supporting our community.


Research Initiatives


Community Support





A Network of Love

Caring for Yourself or a Loved One

Join our FA Family Network, which gives you access to educational materials, resources, support services, and community. All information and services are free, and your information is kept confidential.

The Latest

News & Events

Introducing the Fanconi Cancer Foundation: A New Era in FA Research & Impact

In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.

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The Genetic Revolution for Fanconi Anemia Begins Now 

World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...

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From Diagnosis to Advocacy: My Story with Fanconi Anemia

My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing. 

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