Board of Directors Archives - Fanconi Cancer Foundation

Bill Katris

Sherri Van Ravenhorst — Thu, 11 Dec 2025 17:33:11 +0000

Bill Katris is a passionate supporter of the Fanconi Cancer Foundation (FCF), driven by personal connection to its mission. Bill and his wife Maria have three daughters, ages 17, 16 and 11, two of whom have Fanconi anemia (FA). He and his family are committed to bettering the lives of all those with FA and doing whatever they can do to support efforts to treat and cure FA-related illnesses and cancers. To that end, Bill and his family have hosted the FCF Swinging for a Cure Golf Tournament & Cocktail Reception for two consecutive years, raising $140,000 in its inaugural year and $160,000 the second year to support research, treatment and innovation for those affected by FA. Bill is proud to be part of the FCF community and is committed to advancing its work and mission to help those with FA through meaningful partnerships and advocacy.

Professionally, Bill is an accomplished trial attorney with over 25 years of experience handling complex commercial litigation. He has represented a wide range of clients, from small businesses to publicly traded companies and government institutions. In addition to his litigation practice, Bill is a certified privacy professional and trusted advisor on regulatory, insurance, and employment matters. Bill also serves as outside general counsel to a number of privately held companies, including technology start-ups, medical practices and several companies in the staffing industry.

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Katherine De Los Santos

Sherri Van Ravenhorst — Thu, 25 Sep 2025 22:03:53 +0000

Katherine De Los Santos grew up in Georgia in a close-knit family with roots in the Dominican Republic. Living with Fanconi anemia has shaped her passion for health care and community service. She recently earned her master’s degree in preclinical sciences from Mercer University and plans to attend medical school with the goal of serving underserved communities in Georgia as a physician. In 2024, Katherine received the Winn/Byrd Award for Adults with FA, recognizing her leadership and contributions to her community.

Katherine recently got engaged and is enjoying planning her wedding. She loves spending time with her cat, being outdoors, hiking, traveling, and sharing her faith.

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Chris Payne

Sherri Van Ravenhorst — Tue, 22 Apr 2025 16:38:35 +0000

Chris and his wife, Melanie, joined the FA community in 2020 when their then-4-year-old son, Elliott, was diagnosed with Fanconi anemia. They live in Alexandria, Virginia, with Elliott and his younger brother, Emmett.

Professionally, Chris has spent his career in international higher education, working with universities around the world to grow their brands and lead student recruitment and fundraising. He is currently the associate vice president for international alumni and development at Georgetown University Law Center in Washington, D.C.

Chris is eager to help find new ways to increase fundraising at this vital time in FCF’s mission to improve cancer treatments. Given his international experience, he’s also interested in supporting FCF’s efforts to expand global outreach to families and researchers outside the United States.

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Adam Becker

admin — Tue, 26 Dec 2023 13:09:00 +0000

Adam and his wife Marissa joined the Fanconi anemia “FAmily” in 2015, when their then-four year old son, Zachary, was diagnosed with FA. Adam and Marissa live in Brooklyn, NY with Zach, his older brother Ben, and their furry feline brother Carl.

Professionally, Adam has made a career of helping good teams scale, first as a management consultant at Accenture and IBM, and for the last 15+ years at a variety of SaaS startups. More often than not, those companies had a “double bottom line”: they were for-profit, while they also sought to improve our global and local communities by promoting recycling, connectedness, and sustainability. He is currently the VP of Services for Digimarc, a services and software provider.

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Will Bloxom

admin — Fri, 05 Aug 2022 12:27:00 +0000

Will is a 30-year-old from Salisbury, Maryland, where he works remotely in data operations management. He was diagnosed with Fanconi anemia in 1997 at age 5 and was transplanted in 2020 during the height of the COVID pandemic at Sloan Kettering Memorial Hospital in New York.

He attended Camp Sunshine sporadically as a child and began attending FA Adult meetings in 2017. Will is almost always willing to partake in clinical trials and in 2015 was a participant in the phase 1 gene therapy trial for FA patients at the Fred Hutchinson research center. He is also a volunteer with Be The Match, the national stem cell donor registry, where he assists his local representative.

Outside of all things medical, Will enjoys gaming, dogs and traveling the world.

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Carmem Bonfim

admin — Tue, 07 Sep 2021 13:06:00 +0000

Dr. Bonfim oversees the Pediatric Stem Cell Transplant Program at the Federal University of Paraná in Brazil. She brings to the board of directors years of experience treating FA patients in Brazil, specializing in stem cell transplants. In addition to treating patients in Brazil, Dr. Bonfim serves as a point of contact for patients in other parts of Latin America and abroad. In 2016, she received the FCF Distinguished Service Award along with her colleague Ricardo Pasquini for her unwavering dedication and exemplary service to the FA community.

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Lynn Frohnmayer

admin — Mon, 19 Mar 2018 11:01:00 +0000

Mother of Kirsten, Mark, Katie, Jonathan and Amy Frohnmayer. All three daughters died from complications of Fanconi anemia (FA).

David and Lynn Frohnmayer founded the Fanconi Anemia Family Support Group in 1985 and the Fanconi Anemia Research Fund (now the Fanconi Cancer Foundation) in 1989. Over the past 32 years, Lynn has served in a variety of roles on the Board of Directors.

Lynn wrote the FA Family Newsletters for decades and now serves as editor of that publication. Lynn and David co-edited two editions of Fanconi Anemia Standards for Clinical Care, and Lynn co-edited later editions of Fanconi Anemia: Guidelines for Diagnosis and Management. She serves on the Award Review Committee, working with a small group of scientists, treating physicians, and FA parents to select grants for FCF funding.

Having three daughters with Fanconi anemia has driven her passion to improve the outcome for patients with this devastating genetic disorder. She is a key fundraiser for the cause and devotes her time to understanding this disease and the promising therapies that will continue to extend the lives of FA patients.

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Win Gouldin

admin — Tue, 21 Jul 2020 16:55:00 +0000

Win first learned of Fanconi anemia through a chance meeting with a good friend from college. At the time, this friend was at the local medical library doing research about the ultra-rare disease with which her son had just been diagnosed. Over the 20+ years that followed, Win has participated in dozens of FCF fundraisers and has seen firsthand the incredible power of love, commitment, courage, and dedication in the FA community. Win was a practicing pharmacist for 10 years prior to moving to the medical side of the pharmaceutical industry. For the past 18 years, he has served as a Regional Scientific Director for Novartis Pharmaceuticals and is currently working for the Oncology division focusing on breast, lung, and head and neck cancers. Win lives in Richmond, VA, and in his free time, he enjoys spending time with family, doing anything outside, attending sporting events, and using his new outdoor kitchen.

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Kevin McQueen

admin — Mon, 19 Mar 2018 10:15:00 +0000

Father of Sean
Kevin McQueen enjoyed a 30-year career in technology and consulting, including more than 25 years at CapTech where he served as CEO for eight years and helped grow the company from 4 people to over 1,000 consultants. He has served on a number of nonprofit and educational boards, including Big Brothers Big Sisters of Richmond, the University of Richmond’s Business School, and Virginia State University. Kevin and his wife, Lorraine, have been deeply involved with FCF since their son Sean’s Fanconi anemia diagnosis in 1999 and have raised nearly $3 million to support research and families. He previously served on FCF’s Board for 12 years, including two years as chair. Kevin lives in Richmond, Virginia, and enjoys skiing, biking, hiking, kayaking, golfing, and playing guitar in his band.

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Joyce Owen

admin — Mon, 08 Apr 2019 13:48:00 +0000

Joyce was a dear friend and neighbor of co-founders Lynn and David Frohnmayer; their daughters were playmates. When Kirsten Frohnmayer was diagnosed with FA, they were all devastated. Joyce, a molecular biologist, was able to help interpret information. When the Frohnmayers founded FARF, Joyce was one of the earliest board members. She did the page layout and editing of the FA Family Newsletter for a number of years, and several editions of the Handbook for Families and Guidelines for Clinical Care. She also designed the first FARF website.

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