Mental Health Archives - Fanconi Cancer Foundation https://fanconi.org/resources-category/mental-health/ Pioneering Research for a Brighter Tomorrow. Thu, 29 Oct 2026 20:31:04 +0000 en-US hourly 1 https://wordpress.org/?v=7.1.4 https://fanconi.org/wp-content/uploads/2024/04/cropped-fanconi-favicon-32x32.png Mental Health Archives - Fanconi Cancer Foundation https://fanconi.org/resources-category/mental-health/ 32 32 Mental Health Toolkit https://fanconi.org/resources/mental-health-toolkit/ Thu, 29 Oct 2026 20:31:04 +0000 https://fanconi.org/?post_type=app_resource&p=6623 The post Mental Health Toolkit appeared first on Fanconi Cancer Foundation.

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]]> Mental Health Resources https://fanconi.org/resources/mental-health-resources/ Thu, 10 Apr 2025 17:50:34 +0000 https://fanconi.org/?post_type=app_resource&p=4866 The post Mental Health Resources appeared first on Fanconi Cancer Foundation.

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]]> Fanconi Anemia 101 https://fanconi.org/resources/fanconi-anemia-101/ Wed, 06 Nov 2024 19:48:44 +0000 https://fanconi.org/?post_type=app_resource&p=4593 The post Fanconi Anemia 101 appeared first on Fanconi Cancer Foundation.

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]]> FA: Impacts of Quality of Life and Mental Health https://fanconi.org/resources/fa-impacts-of-quality-of-life-and-mental-health/ Wed, 01 Mar 2023 09:39:00 +0000 https://staging.fanconi.org/resources/fa-impacts-of-quality-of-life-and-mental-health/ This session discusses common mental health challenges faced by adults living with FA and recommendations for advocating for mental health needs with primary care teams.

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]]> This session discusses common mental health challenges faced by adults living with FA, recommendations for advocating for mental health needs with primary care teams, and strategies for improving mental health. Researchers also describe the Psychosocial Experiences of Adults with Fanconi Anemia (FA) Study that opened for enrollment in fall 2022.

Speaker Bios:

Megan Voss holds a doctorate of nursing practice with experience in the speciality areas of oncology, integrative health, and mental health care. She has been working with adolescents and young adults with a diagnosis of Fanconi Anemia at the University of Minnesota since 2014. And her research focuses on better understanding the incidence of mental illness in the FA community and other factors that impact quality of life.

Kathleen Bogart, PhD is an associate professor of psychology at Oregon State University. She studies mental health in people with rare disorders, including Fanconi Anemia, and has a rare disorder herself. An advocate for people with rare disorders and disabilities, she serves on several boards including the American Psychological Association Committee on Disability Issues in Psychology and the Moebius Syndrome Foundation Scientific Advisory Board.

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]]> Toxic Positivity: Why It’s Okay to Not Be Okay https://fanconi.org/resources/toxic-positivity-why-its-okay-to-not-be-okay/ Thu, 30 Jun 2022 10:28:00 +0000 https://staging.fanconi.org/resources/toxic-positivity-why-its-okay-to-not-be-okay/ Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences

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]]> Megan Voss, DNP, RN, Integrative Therapy Program Director, University of Minnesota speaks about toxic positivity and consequences

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]]> Psychosocial Impacts of Living with a Rare Disease https://fanconi.org/resources/psychosocial-impacts-of-living-with-a-rare-disease/ Tue, 07 Jun 2022 10:00:00 +0000 https://staging.fanconi.org/resources/psychosocial-impacts-of-living-with-a-rare-disease/ Kathleen Bogart, PhD, Director of Disability & Social Interaction Lab, Oregon State University Presented in October 2020 as part of the Meeting for Adults with Fanconi Anemia

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]]> Kathleen Bogart, PhD, Director of Disability & Social Interaction Lab, Oregon State University

Presented in October 2020 as part of the Meeting for Adults with Fanconi Anemoa

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]]> What is FA? https://fanconi.org/resources/what-is-fa/ Thu, 23 Sep 2021 11:20:00 +0000 https://staging.fanconi.org/resources/what-is-fa/ Fanconi anemia is a rare disease passed down through families (inherited) that mainly affects the bone marrow. Ray Monnat gives an overview of symptoms and treatments.

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]]> Caregivers: We See You https://fanconi.org/resources/caregivers-we-see-you/ Thu, 23 Sep 2021 10:45:00 +0000 https://staging.fanconi.org/resources/caregivers-we-see-you/ Allison Breininger and Donna Behlke, both caregivers to a loved one with FA, share their experiences and provide tips for other caregivers.

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]]> Social Work for Patients Undergoing Transplant https://fanconi.org/resources/social-work-for-patients-undergoing-transplant/ Thu, 23 Sep 2021 10:41:00 +0000 https://staging.fanconi.org/resources/social-work-for-patients-undergoing-transplant/ Hear about the role of social work support for those undergoing a bone marrow transplant

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]]> Cultivating Wellbeing and Resilience https://fanconi.org/resources/cultivating-wellbeing-and-resilience/ Thu, 23 Sep 2021 10:40:00 +0000 https://staging.fanconi.org/resources/cultivating-wellbeing-and-resilience/ Mental and emotional health plays a huge role in our wellbeing. Hear about ways to cultivate wellbeing from Dr. Megan Voss.

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