Cancer Archives - Fanconi Cancer Foundation https://fanconi.org/resources-category/cancer/ Pioneering Research for a Brighter Tomorrow. Wed, 06 Nov 2024 19:48:44 +0000 en-US hourly 1 https://wordpress.org/?v=6.9.4 https://fanconi.org/wp-content/uploads/2024/04/cropped-fanconi-favicon-32x32.png Cancer Archives - Fanconi Cancer Foundation https://fanconi.org/resources-category/cancer/ 32 32 Fanconi Anemia 101 https://fanconi.org/resources/fanconi-anemia-101/ Wed, 06 Nov 2024 19:48:44 +0000 https://fanconi.org/?post_type=app_resource&p=4593 The post Fanconi Anemia 101 appeared first on Fanconi Cancer Foundation.

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]]> 8 FA Cancer Facts https://fanconi.org/resources/8-fa-cancer-facts/ Fri, 14 Jun 2024 15:51:28 +0000 https://fanconi.org/?post_type=app_resource&p=4274 The post 8 FA Cancer Facts appeared first on Fanconi Cancer Foundation.

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]]> Cancer in Fanconi Anemia: A Clinical Overview https://fanconi.org/resources/cancer-in-fanconi-anemia-a-clinical-overview/ Fri, 13 Oct 2023 10:50:00 +0000 https://staging.fanconi.org/resources/cancer-in-fanconi-anemia-a-clinical-overview/ Dr. Jennifer Grandis (University of California, San Francisco) gives a clinical overview of cancer in Fanconi anemia patients, delivered at the 2023 FA Scientific Symposium.

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]]> Dr. Jennifer Grandis (University of California, San Francisco) gives a clinical overview of cancer in Fanconi anemia patients, delivered at the 2023 FA Scientific Symposium.

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]]> “Power to U”: New campaign to manage the increased risk for oral cancer https://fanconi.org/resources/power-to-u-new-campaign-to-manage-the-increased-risk-for-oral-cancer/ Fri, 16 Dec 2022 09:22:00 +0000 https://staging.fanconi.org/resources/power-to-u-new-campaign-to-manage-the-increased-risk-for-oral-cancer/ We focus on early detection by providing all different kinds of support (including clinicians and individuals with FA)

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]]> We all know the sooner a cancer is detected, the higher chance of low-invasive and successful treatment and better life quality. Therefore, we developed a new campaign taking a radically different approach to detecting cancer early for patients, when it is easier to treat called “Power to U”! We want to tackle your fears of developing cancer head-on and help give you the tools to do self-examinations.

We are part of the newly established FACC – Fanconi Anemia Cancer Consortium – initiated by FARF. You will get to know at this year’s meeting all aspects of this consortium and will have the opportunity to meet the people behind the scene. Our part in the FACC is focusing on early detection by providing all different kinds of support (including clinicians and individuals with FA). To achieve this goal, together with FA adults in different countries, we developed a unique special self-empowering training program.

Presented at the 2022 Retreat for Adults with FA in Austin, Texas.

En Español
Todos sabemos que cuanto antes se detecte un cáncer, mayores serán las posibilidades de un tratamiento poco invasivo y exitoso y una mejor calidad de vida. ¡Por lo tanto, desarrollamos una nueva campaña con un enfoque radicalmente diferente para detectar el cáncer temprano para los pacientes, cuando es más fácil de tratar, llamada “Poder para ti”! Queremos abordar de frente sus temores de desarrollar cáncer y brindarle las herramientas para realizar autoexámenes. Desarrollamos un programa especial único de capacitación para el autoempoderamiento. Lo invitamos a aprender y capacitarse en solo una hora: · Cómo realizar un autoexamen bucal completo · Qué es una buena documentación y qué tan fácil puede hacerlo · Qué tipo de cambios se encuentran en las cavidades bucales de las personas con FA · ¿Qué hacer y dónde obtener ayuda si ve cambios? ¿Listo para ser parte de esta nueva campaña por más “Poder para ti”? ¡Vamos!

Presentado en el Retiro 2022 para Adultos con AF en Austin, Texas.

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]]> The Future of FA Cancer Research: The Fanconi Anemia Cancer Consortium https://fanconi.org/resources/the-future-of-fa-cancer-research-the-fanconi-anemia-cancer-consortium/ Fri, 16 Dec 2022 09:20:00 +0000 https://staging.fanconi.org/resources/the-future-of-fa-cancer-research-the-fanconi-anemia-cancer-consortium/ FARF Scientific Director, Isis Sroka, talks about the newly developed Fanconi Anemia Cancer Consortium (FACC).

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]]> FARF Scientific Director, Isis Sroka, talks about the newly developed Fanconi Anemia Cancer Consortium (FACC). This talk will provide an overview of the FACC, which represents a collaborative group of investigators, along with their academic medical centers, the National Institutes of Health, patient advocacy groups (PAGs), and patients affected by Fanconi anemia (FA). The FACC was established to create a collaborative partnership between the FA community and a network of expert FA clinicians and physician scientists who have expertise and experience in the diagnosis and management of FA cancers and FA cancer research. The FACC aims to streamline cancer care decision-making processes for patients with FA through evidence-based research.

Presented at the 2022 Retreat for Adults with FA in Austin, Texas.

En Español

La Directora Científica de la FARF, Isis Sroka, habla sobre el recién creado Consorcio de Cáncer de Anemia de Fanconi (FACC). Esta charla proporcionará una visión general del FACC, que representa un grupo de colaboración de investigadores, junto con sus centros médicos académicos, los Institutos Nacionales de Salud, los grupos de defensa de los pacientes (PAG) y los pacientes afectados por la anemia de Fanconi (FA). El FACC se estableció para crear una asociación de colaboración entre la comunidad de FA y una red de médicos clínicos y científicos expertos en FA que tienen conocimientos y experiencia en el diagnóstico y el tratamiento de los cánceres de FA y en la investigación del cáncer de FA. El FACC tiene como objetivo agilizar los procesos de toma de decisiones sobre el cuidado del cáncer para los pacientes con FA a través de la investigación basada en la evidencia.

Presentado en el Retiro 2022 para Adultos con FA en Austin, Texas.

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]]> The NIH Center Comprehensive Program for Surveillance of Squamous Cell Carcinoma in Patients with FA https://fanconi.org/resources/the-nih-center-comprehensive-program-for-surveillance-of-squamous-cell-carcinoma-in-patients-with-fa/ Fri, 16 Dec 2022 09:12:00 +0000 https://staging.fanconi.org/resources/the-nih-center-comprehensive-program-for-surveillance-of-squamous-cell-carcinoma-in-patients-with-fa/ Neelam Giri and Sharon Savage cover a brief description of the protocol to prospectively evaluate and follow patients with FA at high risk of SCC with screening at regular intervals.

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]]> Neelam Giri and Sharon Savage’s talk will cover a brief description of the protocol to prospectively evaluate and follow patients with FA at high risk of SCC with screening at regular intervals. This study incorporates oral brush biopsy with diagnostic cytology and DNA cytometry for oral cancer surveillance utilizing standard operating procedures and teaching materials developed by the FABB team. The protocol also includes regular screening for esophageal and anogenital cancers. This study is part of the FA cancer consortium and has a strong collaborative component. In addition to streamlining cancer surveillance for patients with FA, the study includes collection and sharing of biospecimen for identification of predictive biomarkers of cancer development to facilitate the advancement of preventive therapies. Our central goal is to establish a framework for cancer screening, prevention, and therapeutic trials for FA through collaboration and sharing of research resources to reduce the burden of cancer in FA.

Presented at the 2022 Retreat for Adults with FA in Austin, Texas.

En Español
La charla de Neelam Giri y Sharon Savage abarcará una breve descripción del protocolo para evaluar y seguir prospectivamente a los pacientes con AF de alto riesgo de CCE con cribado a intervalos regulares. Este estudio incorpora la biopsia por cepillado oral con citología diagnóstica y citometría de ADN para la vigilancia del cáncer oral utilizando procedimientos operativos estándar y materiales didácticos desarrollados por el equipo de FABB. El protocolo también incluye el cribado regular del cáncer esofágico y anogenital. Este estudio forma parte del consorcio del cáncer de AF y tiene un fuerte componente de colaboración. Además de agilizar la vigilancia del cáncer para los pacientes con FA, el estudio incluye la recogida y el intercambio de muestras biológicas para la identificación de biomarcadores predictivos del desarrollo del cáncer para facilitar el avance de las terapias preventivas. Nuestro objetivo central es establecer un marco para el cribado del cáncer, la prevención y los ensayos terapéuticos para la FA a través de la colaboración y el intercambio de recursos de investigación para reducir la carga del cáncer en la FA.

Presentado en el Retiro 2022 para Adultos con AF en Austin, Texas.

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]]> FARF Clinical Programs: Virtual Tumor Board & FA Registry https://fanconi.org/resources/farf-clinical-programs-virtual-tumor-board-fa-registry/ Fri, 16 Dec 2022 09:00:00 +0000 https://staging.fanconi.org/resources/farf-clinical-programs-virtual-tumor-board-fa-registry/ FARF's Clinical Science Program Manager, Andrea Ronan, gives an overview of the FARF clinical programs, including the Fanconi Anemia Registry and Virtual Tumor Board.

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]]> FARF’s Clinical Science Program Manager, Andrea Ronan, gives an overview of the FARF clinical programs, including an update regarding improvements coming to the Fanconi Anemia Registry. Andrea will also discuss the Fanconi Anemia Virtual Tumor Board (VTB) to answer common questions, such as what service the program provides and when participants should contact the VTB.

Una descripción general de los programas clínicos de FARF, incluida una actualización sobre las mejoras que se realizarán en el Registro de anemia de Fanconi. Andrea también hablará sobre el comité de tumores virtual de la anemia de Fanconi (VTB) para responder preguntas comunes, como qué servicio brinda el programa y cuándo los participantes deben comunicarse con VTB.

Presentado en el Retiro 2022 para Adultos con AF en Austin, Texas.

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]]> Screening & Diagnosis of Head & Neck Cancer in Adults with FA https://fanconi.org/resources/screening-diagnosis-of-head-neck-cancer-in-adults-with-fa/ Thu, 30 Jun 2022 10:48:00 +0000 https://staging.fanconi.org/resources/screening-diagnosis-of-head-neck-cancer-in-adults-with-fa/ Patrick Ha, MD, Otolaryngology at University of California - San Francisco speaks about the screening and diagnosis of head and neck cancer in adults with Fanconi anemia.

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]]> Patrick Ha, MD, Otolaryngology at University of California – San Francisco speaks about the screening and diagnosis of head and neck cancer in adults with Fanconi anemia.

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]]> Gynecologic Cancer & Fanconi Anemia: What You Need to Know https://fanconi.org/resources/gynecologic-cancer-fanconi-anemia-what-you-need-to-know/ Thu, 30 Jun 2022 10:42:00 +0000 https://staging.fanconi.org/resources/gynecologic-cancer-fanconi-anemia-what-you-need-to-know/ Dr. Katy Pennington discusses gynecologic cancer in Fanconi anemia

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]]> Dr. Katy Pennington discusses gynecologic cancer in Fanconi anemia

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]]> Oral Care & Self-Examination for Children with FA https://fanconi.org/resources/oral-care-self-examination-for-children-with-fa/ Thu, 21 Oct 2021 11:49:00 +0000 https://staging.fanconi.org/resources/oral-care-self-examination-for-children-with-fa/ Why oral exams are crucial to preventing cancer and how to perform them at home.

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