FARF Registration

if registering a minor FA patient
if applicable
required
Name Street Address eg: 123 Main Street, Apt 251 City State Country Postal Code Home Phone Cell Phone Email 1 Email 2
Name Date of Birth MM/DD/YYYY Ethnicity Gender Date or Diagnosis MM/DD/YYYY Transfusions? Transfusion Frequency Transplanted? Transplanted Date MM/DD/YYYY Where Transplanted? Was Transplant Donor Related? Transplant Source Degree of Match FA Gene FA Gene Complementation Group if determined Diagnosis of solid mass tumor Tumor Location (oral, vulva, etc.) HPV Vaccination? HPV Vaccination Date MM/DD/YYYY Myelodysplastic Syndrome? Myelodysplastic Syndrome Date MM/DD/YYYY Leukemia? Leukemia Date MM/DD/YYYY FA Characteristics eg: short stature, skeletal anomalies, kidney anomalies, etc. Medications currently in use
Name Date of Birth MM/DD/YYYY
For Adults with FA
Name Date of Birth MM/DD/YYYY
for newsletters and meeting announcements
Is there anything else you'd like us to know about you or your family?