In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.
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Peter Pless
Board Member | MD
Father of Julia
Peter Pless is board certified in Internal Medicine and Dermatology, has a private practice in dermatology and is active on the medical staff at the Meadville Medical Center in Meadville, Penn. He is a clinical instructor at Lake Erie College of Osteopathic Medicine in Erie, Penn. and a lecturer for the Nurse Practitioner Program at Edinboro University.
As a parent of two daughters, one a young adult with Fanconi anemia, his interest on the board is to help advance the goals of the founders. Notably, this entails increasing understanding of FA so that treatment and preventable strategies can improve the quality of life for those who have this disease. His goal is to direct funding, with the help of scientists, to support research studies.
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World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...
My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing.