Community News


No Longer an Orphan

No Longer an Orphan

By: Sharon Schuman, PhD | Jun 12th, 2018

FA was once an orphan disease that no one knew anything about, except that it was rare, it affected the blood and it was fatal. Thanks to 30 years of research, this is no longer the case.

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Topics: Stories

9th Fanconi Anemia Day Raises $52,000

9th Fanconi Anemia Day Raises $52,000

Jun 7th, 2018

This May, 30 FA families and members of the FA community held fundraisers all over the country and beyond to raise funds for research & family services.

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5K for FA Raises $28,000

5K for FA Raises $28,000

May 18th, 2018

The 4th Annual 5K for FA in honor of Eli Lana took place May 5 in Hilton, NY.

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19th Annual Concert & Wine Raises $22,000

19th Annual Concert & Wine Raises $22,000

Apr 12th, 2018

FARF friend and board member Sharon Schuman held her annual concert and wine benefit for FA research on April 8 in Eugene, Ore. FARF co-founder Lynn Frohnmayer spoke about the future of FA research.

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Running for Her Life

Running for Her Life

Apr 21st, 2017

Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.

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Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Apr 15th, 2017

The daughter of the late University of Oregon President Dave Frohnmayer and his wife Lynn was one of their 3 daughters who inherited Fanconi Anemia, which can lead to bone marrow failure and cancer.

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Topics: Stories