Research Priorities

The Fanconi Anemia Research Fund seeks to improve the lives of individuals with Fanconi anemia through research that focuses on the rapid discovery and development of therapies or strategies that treat, control or cure Fanconi anemia.

We have particular interest in supporting interdisciplinary and translational research efforts that effectively address one or more of the following priorities:

  • To understand how alteration of the Fanconi anemia genes and their products lead to the clinical manifestations of Fanconi anemia.
  • To determine the causes of bone marrow failure, myelodysplasia and leukemia in individuals with Fanconi anemia, and to develop strategies to prevent, treat and cure these disorders.
  • To define the pathogenesis of cancers that affect persons with Fanconi anemia, and to develop strategies for early detection, prevention, treatment and cure.
  • To identify practical and proactive management strategies that families and persons with Fanconi anemia can use to develop and maintain a high quality of life.
  • To support the creation of shared resources, databases and technologies for the international Fanconi anemia research community.

Operating Principles:

  • We foster active engagement and partnership of Fanconi anemia families with clinicians and researchers in designing and pursuing our strategies.
  • We invite proposals from collaborative research groups and individual investigators that are responsive to the Fund’s research strategy and advance one or more of the above priorities.
  • We sponsor conferences and symposia with the specific goals of advancing knowledge, publicizing discoveries and fostering the broadest possible collaborations to advance the above priorities.
  • We require all grant recipients and conference or symposia attendees to make data, models and tools rapidly available in the public domain.

Approved 1/26/2014 by Fund’s Board of Directors

of note

Now accepting applications for the $5,000 Amy Winn & Christopher Byrd Award for Adults with FA learn more...

The first Joel Walker Scientific Focus Meeting has been announced learn more...

FARF Receives Grant to Expand Development Program learn more...

Aileen Carlos, Portland-based lawyer, joins the Board of Directors learn more...