On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.
Walker's fight and strength made him the definition of heroic. On this day, I tell Walker's story about his beautiful soul, his courage and the will to smile under any circumstances.
Meet Joseph Hallett, whose work aims to better understand radiation in FA, and ultimately inform its better use in clinical practice.
Learn about FA researcher Jacob Corn, who is working on gene editing in FA
This summer, a remarkable team of individuals united as “Endure for a Cure” to achieve something truly extraordinary: bike over 500 miles while raising $130,000 for research!
Ana grew up in the Dominican Republic, and in response to the needs for access to medication, diagnosis, treatment, and education for those with FA there, she established Un Corazon por Fanconi.