Community News


Head and Neck Squamous Cell Carcinoma: Developing Guidelines to Maximize Therapeutic Outcomes

HNSCC in FA Meeting

Jun 13th, 2018

Clinical and scientific experts met in Pittsburgh to discuss HNSCC in FA and how to improve prevention and treatment outcomes.

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Topics: Announcements

Dr. Sudhir Borgonha Joins FARF as Translational Science Director

Dr. Sudhir Borgonha Joins FARF as Translational Science Director

Jun 13th, 2018

Dr. Borgonha will lead FA translational science efforts, including the development of a clinical registry and biobank.

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Topics: Announcements

No Longer an Orphan

No Longer an Orphan

By: Sharon Schuman, PhD | Jun 12th, 2018

FA was once an orphan disease that no one knew anything about, except that it was rare, it affected the blood and it was fatal. Thanks to 30 years of research, this is no longer the case.

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Topics: Stories

9th Fanconi Anemia Day Raises $52,000

9th Fanconi Anemia Day Raises $52,000

Jun 7th, 2018

This May, 30 FA families and members of the FA community held fundraisers all over the country and beyond to raise funds for research & family services.

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Topics: Stories

5K for FA Raises $28,000

5K for FA Raises $28,000

May 18th, 2018

The 4th Annual 5K for FA in honor of Eli Lana took place May 5 in Hilton, NY.

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Topics: Stories

Two Clinical Trials Funded

Two Clinical Trials Funded

Apr 30th, 2018

Trials investigating the FDA-approved drug metformin and the natural antioxidant quercetin were funded in early 2018.

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Topics: Announcements