Meetings for Adults with FA

Upcoming Meeting for Adults with FA

September 26th-29th, 2018 in Newport Beach, California.

The Meeting for Adults with FA is held in conjunction with FARF’s annual Scientific Symposium. The 2018 Symposium will be September 27th through 30th at the same hotel. Attendees from both meetings will be sharing meals together, including the annual Symposium banquet dinner. Adult Meeting attendees are welcome to attend Symposium sessions as well.

There is no cost to attend this meeting, except for your travel expenses. Lodging will be provided Wednesday night through Saturday night, and meals will be provided through breakfast on Sunday. FARF has a scholarship program to help with travel expenses. If you are unable to attend without financial assistance, please request a scholarship application from Marie Sweeten at [email protected]

Adults with FA may bring a guest (or guests) such as a friend, a support person, or a family member to the meeting, though one hotel room will be offered per family or group. FARF will reserve your room for you once your registration has been confirmed. Childcare is not offered at the meeting.

If you have questions, please contact Marie Sweeten at [email protected] or 541-687-4658.

Registration for 2018 is not yet open. Do not make travel arrangements until your registration has been confirmed by FARF.

Click here to see the 2017 agenda.

Previous Meeting for Adults with FA

To view PowerPoint presentations from the 2014 Adults with FA Meeting, please follow the links below:
(Please note that some of the files are quite large and may take a few moments to load.)

Fanconi Anemia 101
by Blanche P Alter, MD, MPH, National Cancer Institute, Rockville, MD

Empowering Wellness with Dynamic Food Therapy
by Christine Dionese L.Ac MSTOM, Co-Founder, Garden Eats, San Diego, CA

Aldehydes: What Are They and Why Should They be Avoided?
by Kalindi Parmar, PhD, Dana-Farber Cancer Institute, Harvard Medical School, Boston, MA

Gynecological Issues Facing Female Fanconi Anemia Patients
Part 1
Part 2
Part 3
by Pamela Stratton, MD, Head, Gynecology Consult Service Program in Reproductive and Adult Endocrinology Eunice Kennedy Shriver NICHD, NIH

Personal Relationships: Genetics and Fertility
by Heather Zierhut, MS, CGC, PhD, University of Minnesota, Minneapolis, MN

of note

The first Joel Walker Scientific Focus Meeting has been announced learn more...

FARF Receives Grant to Expand Development Program learn more...

Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through life learn more...