SCC Fact Sheet

Head and neck squamous cell carcinoma (HNSCC) is a significant threat for people with FA, regardless of bone marrow transplantation status. Not only is the incidence of HNSCC considerably higher than in the general population (500-700 times higher), patients with FA present with these types of cancers at a younger age than those without FA – the median age is 27 years. Regular screenings are critically important.

To help you communicate the urgency of this issue with health care professionals, we’ve prepared two flyers – one for dentists and one for ear, nose and throat doctors (ENTs).The flyers include specific instructions about how to conduct a thorough oral cancer screening exam. We recommend that you take a flyer with you to every visit with your ENT physician and dentist. You can request color copies from our office or download the files below.  **

SCC Fact Sheet For Dentists
SCC Fact Sheet for ENTs

**Special thanks to FA parent and oral surgeon, David Fiaschetti, who consulted on this project.

Information provided on this page about medications, treatments or products should not be construed as medical instruction or scientific endorsement. Always consult your physician before taking any action based on this information.



of note

The first Joel Walker Scientific Focus Meeting has been announced learn more...

FARF Receives Grant to Expand Development Program learn more...

Aileen Carlos, Portland-based lawyer, joins the Board of Directors learn more...