Lynn and Dave Frohnmayer, parents of children afflicted by Fanconi anemia, founded the FA Family Support Group in 1985. They wrote and edited the FA Family Newsletter. They also wrote Fanconi Anemia: A Handbook for Families and Their Physicians and contributed to Fanconi Anemia: Guidelines for Diagnosis and Management. In 1989, they helped incorporate the Fanconi Anemia Research Fund, Inc., a tax-exempt nonprofit corporation,to further scientific research.
Dave Frohnmayer, who passed away in 2015, was President Emeritus and Professor of Law at the University of Oregon. He served as Attorney General of Oregon from 1981 to 1991 and was Dean of the University of Oregon School of Law from 1992 to 1994. He was educated at Harvard College and held an MA degree from Oxford University, where he studied as a Rhodes Scholar. He received his JD from the University of California, Berkeley. Dave was a founding Director of the National Marrow Donor Program and a past member of the Board of Trustees of the Fred Hutchinson Cancer Research Center. He also served as an advisor to the Board of Directors of the Fanconi Anemia Research Fund.
Lynn Frohnmayer is a graduate of Stanford University and received her Master in Social Work degree from Smith College. She has been a caseworker and a manager for the Oregon Children’s Services Division and a national consultant and trainer on foster care issues. She is a past member of the Board of Directors of Doernbecher Children’s Hospital Foundation. Lynn has served as Family Support Coordinator for the Fanconi Anemia Research Fund and is now advisor to the Board of Directors.
Lynn and Dave are the parents of Mark, Kirsten, Katie, Johnathan, and Amy. Their daughter Katie died from complications of FA in 1991, at the age of 12. Another daughter, Kirsten, died of graft-versus-host disease of the lungs (following a bone marrow transplant for FA) in June 1997, at the age of 24. Their youngest child, Amy, died in October 2016 at age 29 from complications from leukemia.