Privacy policy

The Fanconi Anemia Research Fund [the Fund] respects the privacy of each individual who uses the Fund’s website. To safeguard your privacy, we have adopted the following privacy policy.

Normal website usage
The Fund has a strong commitment to Internet privacy. You can visit all portions of our site without revealing your identity or any personal information.

Collection of personally identifiable information
The Fanconi Anemia Research Fund may collect e-mail addresses and other personally identifiable data about visitors when such data is voluntarily submitted to our site. For example, our site may use information collection forms for visitors to request information or to register for the FA Annual Family Meeting or a particular conference. All such information is collected and stored in a manner appropriate to the nature of the data.

Community Tools
We provide space on our website for links to the personal websites of FA families. These personal pages thus become public, and personal information disclosed there will be seen by others. Exercise caution when posting information or providing information about yourself to others, especially contact information, such as street address, telephone number or email address.

Confidentiality of User Information
The Fanconi Anemia Research Fund does not sell, exchange or otherwise disclose user information outside the organization.

Like most websites, the Fanconi Anemia Research Fund may place a cookie, or small file, in the browser files of a visitor’s computer. We do not use cookies to track your movement among different web sites and do not exchange cookies with other entities.

Links to Other Sites
Our site provides links to other web sites of relevance to Fanconi anemia. The Fanconi Anemia Research Fund is not responsible for the actions of linked sites. We encourage you to review the privacy policy of each site you visit.

Privacy Policy Changes
We will post any changes to our privacy policy on this website.

Questions or Concerns
If you have questions about our website privacy practices, feel free to contact us at [email protected].

of note

Now accepting applications for the $5,000 Amy Winn & Christopher Byrd Award for Adults with FA learn more...

The first Joel Walker Scientific Focus Meeting has been announced learn more...

FARF Receives Grant to Expand Development Program learn more...

Aileen Carlos, Portland-based lawyer, joins the Board of Directors learn more...