Meetings for Adults with FA

Upcoming Meeting for Adults with FA

September 13th-16th at the Grand Hyatt Hotel in Atlanta, Georgia.

Tentative presentation topics include:

    Fanconi Anemia 101
    Bone Marrow Transplants in Adults with FA
    Head & Neck Cancer
    Gynecological Issues
    New Treatments for FA
    Holistic Wellness

In addition, support groups will be offered daily. Opportunities to participate in FA research and oral cancer screenings will also be available. A final agenda for the meeting will be posted as soon as it is complete, but the meeting will start at 3:00 pm Wednesday, September 13th, and will run through noon Saturday, September 16th.

This year, the Meeting for Adults with FA will be held in conjunction with FARF’s annual Scientific Symposium. The Symposium will be September 14th through 17th at the same hotel. Attendees from both meetings will be sharing meals together, including the annual Symposium banquet on Friday evening. Adult Meeting attendees are welcome to attend Symposium sessions as well.

There is no cost to attend this meeting, except for your travel expenses. Lodging will be provided Wednesday night through Saturday night, and meals will be provided through breakfast on Sunday. FARF has a scholarship program to help with travel expenses. If you are unable to attend without financial assistance, please request a scholarship application from Marie Sweeten at marie@fanconi.org

Adults with FA may bring a guest (or guests) such as a friend, a support person, or a family member to the meeting, though one hotel room will be offered per family or group. FARF will reserve your room for you once your registration has been confirmed. Childcare is not offered at the meeting.

If you have questions, please contact Marie Sweeten at marie@fanconi.org or 541-687-4658.

Please register at your earliest convenience. Registration closes August 2, 2017, or when the meeting reaches full capacity. Do not make travel arrangements until your registration has been confirmed by FARF.

Hope to see you in Atlanta!

Click here to register!

Previous Meeting for Adults with FA

To view PowerPoint presentations from the 2014 Adults with FA Meeting, please follow the links below:
(Please note that some of the files are quite large and may take a few moments to load.)

Fanconi Anemia 101
by Blanche P Alter, MD, MPH, National Cancer Institute, Rockville, MD

Empowering Wellness with Dynamic Food Therapy
by Christine Dionese L.Ac MSTOM, Co-Founder, Garden Eats, San Diego, CA

Aldehydes: What Are They and Why Should They be Avoided?
by Kalindi Parmar, PhD, Dana-Farber Cancer Institute, Harvard Medical School, Boston, MA

Gynecological Issues Facing Female Fanconi Anemia Patients
Part 1
Part 2
Part 3
by Pamela Stratton, MD, Head, Gynecology Consult Service Program in Reproductive and Adult Endocrinology Eunice Kennedy Shriver NICHD, NIH

Personal Relationships: Genetics and Fertility
by Heather Zierhut, MS, CGC, PhD, University of Minnesota, Minneapolis, MN

of note

Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through life learn more...

Register now for the 2017 FA Symposium! learn more...

We are pleased to welcome Mark Quinlan to the FARF team as Executive Director learn more...

Five Fanconi Anemia Projects Funded in Last Year Thanks to Knight Family learn more...