Family Education and Support Services Registration Form
Family Education and Support Services provide education and peer support to help families affected by Fanconi anemia (FA). Educational materials include the following publications: FA Family Newsletter, Fanconi Anemia: Guidelines for Diagnosis & Management, FA Courier, FA Testing & Treatment Resource Guide and other publications. The Fund also holds an annual Family Meeting, Meetings for Adults with FA, moderates a restricted-membership E-group for FA families and a support group on Facebook.
The Family Information form allows us to have current contact information for you, and to maintain follow-up. Your privacy is important to us. You will always be asked for your permission to publish your family information in the annual International Family Directory, and before referring other FA families to you.