Annual Family Meeting

The 2016 Family Meeting will take place June 24-29 at Camp Sunshine in Casco, Maine. Click here for 2016 application.

Click here for the official Family Meeting Invitation and Information packet.

*To apply for a travel scholarship for the Family Meeting, contact Marie Sweeten, Family Services Director.

The Family Meeting is a unique event that allows families registered with the Fanconi Anemia Research Fund (FARF) to attend presentations by researchers and physicians who are active in the research and treatment of Fanconi anemia (FA), to attend support groups for help in coping with the disease, to voluntarily participate in FA research projects, and to connect with other families affected by FA. Camp Sunshine volunteers provide a fun-filled program for children with FA and their siblings.

2016 Family Meeting Agenda



2015 Family Meeting Agenda

Videos from the 2015 Family Meeting

Available Presentations from the 2015 Family Meeting are listed below:


2014 Family Meeting Agenda

Videos from the 2014 Family Meeting

Presentations from the 2014 Family Meeting are listed below:


of note

The Fund is hiring a Philanthropy Director learn more...

Phil and Penny Knight Pledge Support for the David B. Frohnmayer Scientific Research Fund learn more...

Get involved in the 7th International FA Day! learn more...

Submit your application for 2016 FA Family Meeting today! learn more...

FIll out your survey of the 2016 Meeting for Adults with FA! learn more...