Annual Family Meeting

The 2017 Family Meeting took place June 23-28 at Camp Sunshine in Casco, Maine.

The Family Meeting is a unique event that allows families registered with the Fanconi Anemia Research Fund (FARF) to attend presentations by researchers and physicians who are active in the research and treatment of Fanconi anemia (FA), to attend support groups for help in coping with the disease, to voluntarily participate in FA research projects, and to connect with other families affected by FA. Camp Sunshine volunteers provide a fun-filled program for children with FA and their siblings.

Are you interested in attending the 2018 Family Meeting? Contact Family Services Director Marie Sweeten.

Click here to fill our your evaluation of the 2017 Family Meeting

Click here to see the 2017 Family Meeting Agenda

2016 Family Meeting Agenda

2015 Family Meeting Agenda

Videos from the 2015 Family Meeting

Available Presentations from the 2015 Family Meeting are listed below:


2014 Family Meeting Agenda

Videos from the 2014 Family Meeting

Presentations from the 2014 Family Meeting are listed below:


of note

Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through life learn more...

Register now for the 2017 FA Symposium! learn more...

We are pleased to welcome Mark Quinlan to the FARF team as Executive Director learn more...

Five Fanconi Anemia Projects Funded in Last Year Thanks to Knight Family learn more...