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Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia

The Fanconi Anemia Research Fund Board of Directors honors the inspirational lives of two beloved former board members with the Amy (Frohnmayer) Winn and Christopher T. Byrd Award for adults with Fanconi Anemia (FA), aged 17 or older. 

Chris and Amy set high goals, devoted their time and energy to making a positive difference, and lived their lives enthusiastically in spite of the challenge of FA.

This $5,000 award will be given annually, to someone who, like Chris and Amy, is striving to make a difference and has set high goals. Does this sound like you? Would this award help you reach these goals?   

The award will be announced each year at the Family Meeting at Camp Sunshine. The award winner is encouraged to receive the award in person at either Camp Sunshine or the Adult FA meeting. The Board will cover travel expenses for the recipient to travel to either of those meetings. If the recipient is not attending the Family Meeting, s/he may be asked to “Skype” into the meeting for the announcement.

This award was created by the board of directors to honor Chris and Amy’s roles as leaders on the FARF board. The board felt it important to recognize that leadership by funding an award in their names that would encourage others to demonstrate leadership in their own way. The award committee is made up of Chris’ mother, Peggy McDaniel, Chris’ partner, Jason Coblentz, Amy’s mother, Lynn Frohnmayer, Amy’s husband, Alex Winn, as well as FARF board member, Rachel Altmann. The committee knows that different people will stretch themselves in different ways and will be looking at applications with this in mind, rather than a preconceived notion about what leadership looks like.

This award is NOT funded by taking money that would otherwise be directed to research and family support. It is funded by individual gifts from board members (in addition to money they already give to FARF for research and family support).

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To Apply:

• Tell us how FA has affected your life, tell us about your goals, and describe how you would use the $5,000 award. You may submit your application as a written essay or video. Please include your name and date of birth (you must be at least 17 as of 4/21/17).
Applications due April 21, 2017. Award recipient will be notified in early May, and will be encouraged to attend either the Family Meeting in Casco, Maine (June 23-28, 2017) or the Adult FA Meeting in Atlanta, Georgia (September 13-16, 2017).
• Submit your application via e-mail to Marie Sweeten at FARF: marie@fanconi.org.

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