Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia

Winner of the Winn/Byrd Award Announced

Congratulations to Matthew Pearl, the winner of the inaugural Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia. The $5,000 award was presented to Matt by FARF Executive Director Mark Quinlan at the annual Family Meeting. Matt is a motivated and inspiring young leader who has embraced the challenges of FA and turned them into lessons to guide his life positively and meaningfully. On behalf of the FARF board and staff, congratulations, Matt! Watch Matt's submission video here.


The Fanconi Anemia Research Fund Board of Directors honors the inspirational lives of two beloved former board members with the Amy (Frohnmayer) Winn and Christopher T. Byrd Award for adults with Fanconi Anemia (FA), aged 17 or older. 

Chris and Amy set high goals, devoted their time and energy to making a positive difference, and lived their lives enthusiastically in spite of the challenge of FA.

This $5,000 award will be given annually, to someone who, like Chris and Amy, is striving to make a difference and has set high goals. Does this sound like you? Would this award help you reach these goals?   

The award will be announced each year at the Family Meeting at Camp Sunshine. The award winner is encouraged to receive the award in person at either Camp Sunshine or the Adult FA meeting. The Board will cover travel expenses for the recipient to travel to either of those meetings. If the recipient is not attending the Family Meeting, s/he may be asked to “Skype” into the meeting for the announcement.

This award was created by the board of directors to honor Chris and Amy’s roles as leaders on the FARF board. The board felt it important to recognize that leadership by funding an award in their names that would encourage others to demonstrate leadership in their own way. The award committee is made up of Chris’ mother, Peggy McDaniel, Chris’ partner, Jason Coblentz, Amy’s mother, Lynn Frohnmayer, Amy’s husband, Alex Winn, as well as FARF board member, Rachel Altmann. The committee knows that different people will stretch themselves in different ways and will be looking at applications with this in mind, rather than a preconceived notion about what leadership looks like.

This award is NOT funded by taking money that would otherwise be directed to research and family support. It is funded by individual gifts from board members (in addition to money they already give to FARF for research and family support).


We are no longer accepting applications for 2017.

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